Economic Modeling Considerations for Rare Diseases
نویسندگان
چکیده
منابع مشابه
Economic considerations of agricultural diseases.
The U.S. livestock industry is among the most economically viable in the world, largely as a result of consistently excellent health status. This is due in no small measure to concerted efforts to exclude diseases present in many other areas of the world. The United States is free of most Office International des Epizooties " List A " diseases , all of which are so classified based on their pot...
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Economic problems related to the prevention, diagnosis and treatment of rare diseases are presented paying particular attention to the costs of financing treatment, including the issue of its refund, which is a fundamental and difficult to solve economic problem of the health care system. Rare diseases, despite the low frequency of occurrence, together cover a large group of diseases being a se...
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Funding of expensive treatments for rare (orphan) diseases is contentious. These agents fare poorly on 'efficiency' or health economic measures, such as the quality-adjusted life years, because of high cost and frequently poor gains in quality of life and survival. We show that cost-effectiveness assessments are flawed, and have only a limited role to play in reimbursement decisions for orphan ...
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Mucopolysaccharidosis VI is an autosomal recessive lysosomal storage disorder associated with severe disability and premature death. The presence of a mucopolysaccharidosis-like disease in indigenous ethnic groups in Colombia can be inferred from archaeological findings. There are several indigenous patients with mucopolysaccharidosis VI currently receiving enzyme replacement therapy. We discus...
متن کاملPractical and Economic Considerations
PUBLIC LENDING RIGHT (PLR) is a right to receive payment in respect of the lending of books (or possibly other materials) to the public. T h e right, which is usually accorded by law, is most commonly thought of as being appropriate to authors, but publishers have sometimes claimed an equal interest. Lending is usually understood to mean lending for use off library premises, but use within the ...
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ژورنال
عنوان ژورنال: Value in Health
سال: 2018
ISSN: 1098-3015
DOI: 10.1016/j.jval.2018.02.008